A WELLINGTON family is appealing for help for their young son who is suffering from a rare genetic illness.

Christopher Csuzdi, aged 6, suffers from a rare genetic disease that has no known name or cure but causes developmental delays.

After two years struggling to understand their son’s condition, his parents Monika and Zoltan were finally given a diagnosis after spending more than £5,000 on private doctors in hope of a diagnosis.

The family has lived in Wellington for 13 years and they say their budget is “near empty”.

They are appealing for donations on their Go Fund Me page for additional help in treating their son’s condition.

“As much as we like our privacy, we decided to go public about Christopher’s needs in order to get extra help,” Zoltan told the Wellington Weekly.

“At the beginning we found it hard to ask for additional help, even from friends. We know every person’s life situation is different and times are tough for everyone at the moment.”

A friend of the Csuzdis held out a fundraiser for Christopher last year, which helped the family get extra treatment for their son. It was with this money that Christopher was at last diagnosed by doctors and a way forward was offered.

At the moment, Christopher receives private physiotherapy and speech therapy.

The family are looking to add some extra treatments, as well as to carry on the current interventions, which they say are working for Christopher.

As the disease is not progressive, Christopher’s condition can improve with treatment, his parents said.

Zoltan said: “Our main goal is to raise an independent child and bring out his potential. He is attending school at Wellesley Park and is in his second year. They are super helpful there and very accommodating.

“Christopher’s disease causes development delay mentally and physically.

“He is not speaking but understands English, Hungarian and British Sign Language, which he uses for communication with pointing.

“He is a smart, upbeat boy who is a bit behind his class in school.”

Zoltan and Monika say they are both driven to provide a better life for their son.

And Zoltan has high praise for his wife for her hard work.

He said: “My wife Monika is doing a marvellous job keeping everything running like clockwork.

“Christopher is on the autistic spectrum with some sensory issues, it is important that we do things in a methodical process and keep the daily routine for him.”

For more information on Christophers condition and to donate go to www.gofundme.com/f/help-christopher-needs